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Increased night sweats and sleep less nights, exhaustion

March 4
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A MyLeukemiaTeam Member

I never had a problem with my lymph glands because I demanded medication before I had organ damage. Most glands are located inside the body where doctors can not see the damage. I requested medication when I had tripled my WBC count in 10 months. I think doctors do not promote medication is because of the cost versus the benefit the medication has with a person's physical and mental health. We do have the right to request medication and medical people have to comply.

March 5
A MyLeukemiaTeam Member

I have NK LGL

March 4
MyLeukemiaTeam

Why are doctors monitoring swollen lymph nodes rather than just lymphocyte percentages?

Doctors often use swollen lymph nodes as a key indicator for when to start treatment because they signal disease progression. When assessing chronic lymphocytic leukemia (CLL) staging, doctors look at whether the condition has a low Show Full Answer

Why are doctors monitoring swollen lymph nodes rather than just lymphocyte percentages?

Doctors often use swollen lymph nodes as a key indicator for when to start treatment because they signal disease progression. When assessing chronic lymphocytic leukemia (CLL) staging, doctors look at whether the condition has a low, intermediate, or high risk of making you sick. Swollen lymph nodes typically indicate intermediate- or high-risk disease.

Physical swelling of lymph nodes, especially when they become very enlarged or painful, is one of the main reasons doctors recommend starting treatment. Not everyone with CLL needs treatment right away, but it's generally recommended for people with very enlarged or painful lymph nodes along with other disease-related symptoms.

Your lymphocyte percentage alone doesn't tell the whole story - doctors need to see how the disease is affecting your body physically. However, your night sweats and exhaustion are important symptoms that deserve attention.

Night sweats are very common with CLL and can be one of the first symptoms before diagnosis. They may indicate that it's time to begin treatment. A MyLeukemiaTeam member shared: "Severe sweating is what sent me to the doctor. He did extensive blood testing, and it turned out to be CLL."

If you're experiencing night sweats before starting treatment, this can be a sign that it's time to begin treatment for your specific type of leukemia. In many people, night sweats become less severe after beginning treatment.

Consider reaching out to your doctor specifically about these symptoms - night sweats, poor sleep, and exhaustion - as they may warrant earlier intervention even without swollen nodes.

March 4

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