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What can be done if platelets keep going down when having leukemia in the blood Cmml 1 besides háving platelets transfusion

A MyLeukemiaTeam Member asked a question 💭
Australia
March 5
 · 
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A MyLeukemiaTeam Member

Nancy if you don't have to work Don't because the tiredness never goes away..it's been with me since September 9th 2011 and it is still here after 14 years and 6 months..rest eat healthy walking is great because it brings oxygen to our cells and helps us fight this battle..I have no energy to work..we got this..but it takes a lot to help us on this journey

March 6
A MyLeukemiaTeam Member

Eat a healthy Diet research what lowers placllets and what raises them.. papaya helps me...was 101 back up to 119 yayyyyyyy

March 6
MyLeukemiaTeam

What options are available for managing low platelets in CMML-1 besides transfusions?

If your platelets keep dropping with CMML-1, there are several treatment approaches beyond transfusions that may help:

Growth Factor Therapy

Neumega (oprelvekin) is a growth factor that specifically encourages platelet production. This Show Full Answer

What options are available for managing low platelets in CMML-1 besides transfusions?

If your platelets keep dropping with CMML-1, there are several treatment approaches beyond transfusions that may help:

Growth Factor Therapy

Neumega (oprelvekin) is a growth factor that specifically encourages platelet production. This medication can help your body make more platelets naturally.

Chemotherapy Options

FDA-approved chemotherapy drugs for CMML may help normalize blood cell counts, including platelets:
- Vidaza (azacitidine)
- Dacogen (decitabine)
- Inqovi (decitabine and cedazuridine)

While these don't cure CMML, they can help bring blood counts into better balance and reduce symptoms.

Stem Cell Transplantation

For eligible patients, a bone marrow transplant offers the potential for cure. This is typically considered for younger people in good health with a matched donor, or when other treatments aren't working.

Preventive Measures

Your doctor may recommend avoiding NSAIDs like aspirin, ibuprofen, and naproxen, as these medications interfere with blood clotting and can increase bleeding risk when platelets are already low.

It's important to discuss these options with your healthcare team to determine which approach makes the most sense for your specific situation.

March 5

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