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A MyLeukemiaTeam Member asked a question 💭
Uk england

I was treated in the early 70s..i have many late effects including multiple brain tumours cptsd

May 6
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MyLeukemiaTeam

What kinds of support and management options are available for people dealing with late effects from leukemia treatment?

First, it's worth saying — being treated in the early 70s and still here to ask this question? That's remarkable, and the challenges you're facing now are real and deserve proper attention.

Late effects Show Full Answer

What kinds of support and management options are available for people dealing with late effects from leukemia treatment?

First, it's worth saying — being treated in the early 70s and still here to ask this question? That's remarkable, and the challenges you're facing now are real and deserve proper attention.

Late effects from leukemia treatment can show up many years after treatment ends, and they vary depending on the type of treatment received. Regular follow-up appointments with your healthcare team are really important for monitoring and managing these effects. Here are some approaches that may help manage late effects:

- Cognitive support — Working with a neuropsychologist can help with memory and concentration challenges
- Brain-training exercises — Puzzles and similar activities can help stimulate cognitive function
- Keeping a symptom journal — This helps your healthcare providers monitor changes and act quickly
- Physical health — Diet and exercise can help reduce the impact of long-term side effects
- Organizational techniques — Using reminders, notes, and alarms can help manage day-to-day cognitive challenges
- Stress-relief practices — Meditation and similar techniques may also help

Connecting with others who have experienced similar late effects through MyLeukemiaTeam can also provide emotional support from people who truly understand what you're going through.

May 6

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