I never had the luxury of choice, there wa a 3% survial rate in 1973, it was take the experimental chemo or die..late effects were unheard of as noone had ever survived that long.
I was one of the pioneers so future generations such as yourself could have options.
Unfortunatly i have to suffer the late effects and would appreciate some possitive feedback.
Personally I avoided chemo treatment avoid the so called ill affects like "brain fog?" I understand medication has possible ill affects but chemo you are guaranteed to have some strange ill affect which may require a hospital visit for a few days? I hope doctors explain the bad ill affects which can happen because of the stress the body undergoes from those drugs? I think a clue about the toxic affects is that the dose has to be given to build up a tolerance inside a person's body before a 100% is given. This means business is not a normal thing for this type of drug? During the 70's when I first heard about chemo for cancer I had heard the drug was so strong that it could kill cancer and cause cancer? The new drugs should not cause either a hospital visit nor cause such bad ill affects?
It sounds like you're asking: "Is there support available for late effects from leukemia treatment, such as tumors and trauma-related conditions?"
That's a really important question, and it's clear you're navigating a lot. Late effects from leukemia treatment are real and can be wide-ranging. While the specific conditions Show Full Answer