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May 9
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A MyLeukemiaTeam Member

I never had the luxury of choice, there wa a 3% survial rate in 1973, it was take the experimental chemo or die..late effects were unheard of as noone had ever survived that long.
I was one of the pioneers so future generations such as yourself could have options.

Unfortunatly i have to suffer the late effects and would appreciate some possitive feedback.

May 9
A MyLeukemiaTeam Member

Personally I avoided chemo treatment avoid the so called ill affects like "brain fog?" I understand medication has possible ill affects but chemo you are guaranteed to have some strange ill affect which may require a hospital visit for a few days? I hope doctors explain the bad ill affects which can happen because of the stress the body undergoes from those drugs? I think a clue about the toxic affects is that the dose has to be given to build up a tolerance inside a person's body before a 100% is given. This means business is not a normal thing for this type of drug? During the 70's when I first heard about chemo for cancer I had heard the drug was so strong that it could kill cancer and cause cancer? The new drugs should not cause either a hospital visit nor cause such bad ill affects?

May 9
MyLeukemiaTeam

It sounds like you're asking: "Is there support available for late effects from leukemia treatment, such as tumors and trauma-related conditions?"

That's a really important question, and it's clear you're navigating a lot. Late effects from leukemia treatment are real and can be wide-ranging. While the specific conditions Show Full Answer

It sounds like you're asking: "Is there support available for late effects from leukemia treatment, such as tumors and trauma-related conditions?"

That's a really important question, and it's clear you're navigating a lot. Late effects from leukemia treatment are real and can be wide-ranging. While the specific conditions you've mentioned aren't all directly listed as leukemia late effects, secondary tumors and psychological impacts are recognized complications.

Here are some known late effects linked to leukemia treatment:

- Secondary cancers or tumors — radiation and chemotherapy can trigger new growths
- Cognitive and psychological effects — sometimes called "chemo brain," but emotional trauma is also real
- Heart, lung, and tissue damage — from radiation or certain chemo drugs
- Vision, hearing, and bone issues — including cataracts and osteoporosis For support, it's strongly recommended to:

- Talk to your oncologist or a survivorship specialist — they can coordinate care across all late effects
- Ask for referrals to neurologists, mental health professionals, or other specialists as needed
- Keep up with regular follow-up appointments — early detection of any new issues makes a big difference

You don't have to manage all of this alone. A good care team can help connect the dots between your leukemia history and the late effects you're experiencing now.

May 9

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