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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question πŸ’­
Philadelphia Area, PA
May 26
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A MyLeukemiaTeam Member

Be sure to join the class action if you have HCL. HCL IS ON THE ACCEPTED DIAGNOSIS LIST FOR COMPENSATION. My story allowed a payment to me .

May 26
MyLeukemiaTeam

Yes, hairy cell leukemia (HCL) is a rare but real form of leukemia β€” and you're definitely not alone. Among MyLeukemiaTeam members, at least 60 people have shared that they or a loved one has been diagnosed with HCL.

HCL is a slow-growing, chronic type of leukemia that starts in the bone marrow and affects B cells, which Show Full Answer

Yes, hairy cell leukemia (HCL) is a rare but real form of leukemia β€” and you're definitely not alone. Among MyLeukemiaTeam members, at least 60 people have shared that they or a loved one has been diagnosed with HCL.

HCL is a slow-growing, chronic type of leukemia that starts in the bone marrow and affects B cells, which are white blood cells that help fight infection. It gets its name from how the cancer cells look under a microscope β€” they have tiny hair-like projections on their surface. Here are some key things to know about HCL:

- It makes up about 1–2% of adult leukemia diagnoses
- Around 600–800 new cases are diagnosed each year in the U.S.
- It's most commonly seen in men over 50, though it can occur in people ages 20–80
- It often progresses slowly, and some people live with it for years without needing treatment

While there's currently no cure, HCL is very treatable. About 85% of people who receive the chemotherapy drug Cladribine achieve complete remission. Other treatment options include additional chemotherapy, immunotherapy, and clinical trials.

It's always worth having open conversations with a healthcare provider about what treatment approach β€” or whether a "watch and wait" approach β€” makes the most sense for each individual situation.

May 26

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