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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 23
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A MyLeukemiaTeam Member

On in wait and watch. Thanks for the tip. That is if they start to put me on meds

June 24
A MyLeukemiaTeam Member

Thanks for all the caution's comments. No one sends positive comments! I hope to stay away from pills rather than take them

June 29
A MyLeukemiaTeam Member

I think it is time for you to switch to Brukinsa. This ill affect does not seem normal but it is happening. The only way you can find out if the medication is causing the problem is to stop taking the pills? I was taking medication and for 7 months I had a strange cough my doctors failed to resolve? I told my pharmacist and he told me to stop taking my medication. It seems a strange cough was a possible ill affect? The cough stopped after a month. I resumed my medication at 50% dose with no change in my health which was good news. All medications list some bad ill affects but the list can grow with new strange ill affects which take time to add to the list? Take care and protect yourself by getting answers to resolve your health issue.

June 28
MyLeukemiaTeam

Headaches are actually one of the most commonly reported side effects of Calquence (acalabrutinib), so what's being experienced is not unusual at all. That said, waking up in the night with severe headaches is definitely something worth flagging to an oncologist sooner rather than later. Other MyLeukemiaTeam members have Show Full Answer

Headaches are actually one of the most commonly reported side effects of Calquence (acalabrutinib), so what's being experienced is not unusual at all. That said, waking up in the night with severe headaches is definitely something worth flagging to an oncologist sooner rather than later. Other MyLeukemiaTeam members have shared similar experiences with treatment-related headaches. The good news is that oncologists have several options to help, including:

- Adjusting the dosage
- Prescribing medications to manage the headaches
- Exploring alternative or complementary approaches to reduce the discomfort

The key takeaway is to not just push through it silently. Letting the treatment team know about this side effect gives them the chance to help. As one oncologist put it, they can't help manage side effects they don't know about.

It's also worth noting that stopping Calquence without consulting a doctor isn't recommended, even when side effects feel unbearable. Working through it with medical guidance is usually the better path forward.

June 23

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