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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question πŸ’­
Saint Louis County, MO
June 25
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A MyLeukemiaTeam Member

It could be several things, ask your doctor or the nurse, that way you know if it is normal pain or what the pain may be related to.

July 9
A MyLeukemiaTeam Member

Yes my husband experienced this. Was told it Could be marrow recovery. Tki toxicity, needed to be lowered on dosage or immunotherapy toxicity. The last two ended up being it. So now he’s just on maintenance dose and he feels lots better. But bone pain is part of the recovery process. Like growing pains all over again. But definitely talk to your oncologist

July 8
A MyLeukemiaTeam Member

Have you had an xray to rule out arthritis or bone on bone requiring a hip replacement?

June 30
MyLeukemiaTeam

Hip and joint pain is a recognized side effect of leukemia treatment, so you're definitely not alone in experiencing this. Many MyLeukemiaTeam members have reported similar pain during their treatment journey.

Pain during leukemia treatment can come from a few different sources:

- Chemotherapy can damage nerves that Show Full Answer

Hip and joint pain is a recognized side effect of leukemia treatment, so you're definitely not alone in experiencing this. Many MyLeukemiaTeam members have reported similar pain during their treatment journey.

Pain during leukemia treatment can come from a few different sources:

- Chemotherapy can damage nerves that control sensation and mobility
- Targeted therapy medications are known to cause joint and bone pain as a common side effect
- The leukemia itself β€” the rapid growth of abnormal white blood cells can also contribute to pain One MyLeukemiaTeam member shared that their joint pain "comes and goes" and can be severe enough to make walking difficult. Another described having severe lower back pain while on targeted therapy β€” so hip pain in that region is something others have experienced too.

It's really important to let your oncology team know about this. They may be able to:

- Adjust your chemo dose to reduce nerve-related pain
- Pause treatment temporarily to allow recovery
- Switch you to a different medication if needed

Don't tough it out in silence β€” your care team has options to help manage this! πŸ’™

June 25

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