I never had any lumps or bumps but an old MRI indicated I had an enlarged spleen (Stage #3 CLL.) I requested medication before I knew this or my medical people told me this critical information. I just learned people with SLL get the lumps and bumps and I had CLL. I hope your treatment is no toxic chemo with ill affects like brain fog or requiring a hospital visit incase your ill affect requires an over night stay? My medication had a whole list of ill affects but nothing happened for a year. Then I got a strange cough so my medication was reduced 50% with no ill affects and all my blood tests indicate 100% normal for everything in my blood.

Good morning Diana. I was on Calquence for 18 months. My hematologist recommended stopping because the body can build up a resistance to the medication. When I first started one normal side effect was upper respiratory (sinus crap) that I could not overcome, even doing what ENT prescribed. Sinus crap has always been my problem. Hematologist checked my IgG (immunoglobulin) and found tanked to 250. The bottom number on range is 650 and they get concerned when below 500. IVIG infusions of Privigen started in Nov 2024 First every 28 days, then 42 days, 53 and 60. The IgG started going down and now back on a 42 day cycle that keeps the IgG just below 600. Labs are always done first and I see hematologist every other visit which works out to be about every 3 months. The butterfly is left in the arm after labs and infusion staff uses that to attach line to the pump. No need to stick twice. Protocol is Tylenol and Benadryl for 30 minutes before starting the pump. Vitals are taken and pump speed upped every 30 minutes. One large and one small bottle takes a good 2 or 2.5 hours. Hope this helps.

9 months ago, my oncologist told me that based on all of my numbers, that I was stage 4, but he also said that I did not need to start treatment because, other factors play a role in determining treatment and when or if to start. I go in for my third "Watch&Wait" blood draw the week July 23rd, and if they way I have been feeling for the last couple weeks is any indication, I believe that I will continue to remain on "Watch&Wait" because, I have felt more energized and rambunctious then I have in a long time. My blood draws are every three months. WBC was 130k 3 months ago
I have been living with CLL since 2015 at which time my WBC was 13k

Leukemia isn’t stages like other cancers but I’d encourage you to talk to your oncologist for clarification. My husband just finished his 5 rounds of immunotherapy (Blina) for ALL and it went well. Wishing you all the best.