Almost twelve year battle so far. I will be starting a study treatment anytime now. Hopefully the treatments will put me in remission once again. God has got this for me.

yes it feel's like you just can't stay awake. I feel better with a little nap. Before C.L.L. I never could take a nap during the day. a year in W. & W. at 69 years old. wishing you blessings.

Based on my limited experience, I think fatigue is normal with CLL.

I was diagnosed in 2015 and did wait and watch for 6 months but counts kept going up. So I started immunotherapy with Rituxan. Every week for 8 weeks. I was tired but ran my own small business, thankfully with some help. After 4 months I did another Roy d of Rituxan for 6 weeks. That gave me 6 months of relief and remission. It was short lived and then I started 6 months of Rituxan/ Bendamustine and Neulasta once a month for 6 months. Got 2.5 years of remission!
Based on my B cell testing I started Imbruvica once a day. Am thankful it’s covered by insurance and I’ve felt so good while taking it. Got most of my energy back too and I’m 74 almost 75

Yes it is one of the main issues. Sometimes I get so tired I fall asleep sitting up ! It comes in waves I have found . I am turning 64 in 2 days 😳