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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question ๐Ÿ’ญ
Australia
July 15
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A MyLeukemiaTeam Member

Very well! I have been on watch and wait w 6mo intervals of blood checks for just over 4 years. Disease stable, only symptom is easy bruising. But it started to progress a little, so going to try and beat it back, I am 64. Great to have this conversation, thank you.

3 days ago
MyLeukemiaTeam

Yes, breathlessness can be a side effect of immunotherapy treatments used for leukemia. It's a known side effect worth being aware of and discussing with your care team.

Here are some reasons why breathlessness can occur during treatment:

- Low red blood cell counts (anemia): Immunotherapy can reduce healthy blood cells Show Full Answer

Yes, breathlessness can be a side effect of immunotherapy treatments used for leukemia. It's a known side effect worth being aware of and discussing with your care team.

Here are some reasons why breathlessness can occur during treatment:

- Low red blood cell counts (anemia): Immunotherapy can reduce healthy blood cells, including red blood cells, which carry oxygen. Fewer red blood cells means less oxygen getting around your body, which can leave you feeling breathless.
- Increased infection risk: Low white blood cell counts from treatment can raise the risk of lung infections, which may cause breathing difficulties.
- Fluid buildup: In some cases, certain targeted therapies can cause fluid to build up in the lungs.
- Inflammation: Some treatments can cause lung inflammation, contributing to shortness of breath. A MyLeukemiaTeam member shared, "I am taking a targeted therapy, and I am short of breath lately," while another noted, "Shortness of breath comes and goes. Always tired."

If you're experiencing breathlessness, it's really important to let your care team know right away. They can check your blood counts and figure out the best way to help manage it. Don't tough it out alone โ€” this is exactly what they're there for! ๐Ÿ’™

July 15
A MyLeukemiaTeam Member

Is there side effects with it

3 days ago
A MyLeukemiaTeam Member

Bob, what is your treatment currently for CMML 1? I just started INVOQI, its decitabine in pill form

3 days ago
A MyLeukemiaTeam Member

Hello Rich4. I receive NO treatment for my CMML in the UK. I am diagnosed as: Chronic so it is 8 weekly Wait and See Blood Checks. I am advised that treatment can be troublesome so the suggestion is to wait and see when the Chronic becomes: Acute. Then I have nothing to lose. I accept that and apart from joint pain I am quite well and cheerful. I Refuse any form of counselling, there is absolutely NOTHING I wish I had done that I have never done, and so I plod along in the knowledge my wife will live her life without any money worries, I have two successful children and no one will ever know I existed in 100 years time. Fact. I have made formal arrangements for Newcastle (Medical Teaching Unit) University to accept my body so bits of me may still be around for a few years? Bits of me may amuse the students? they may even learn a bit about this rare CMML?

3 days ago

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A MyLeukemiaTeam Member asked a question ๐Ÿ’ญ
Australia

A MyLeukemiaTeam Member asked a question ๐Ÿ’ญ
Australia

A MyLeukemiaTeam Member asked a question ๐Ÿ’ญ
Australia

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