Very well! I have been on watch and wait w 6mo intervals of blood checks for just over 4 years. Disease stable, only symptom is easy bruising. But it started to progress a little, so going to try and beat it back, I am 64. Great to have this conversation, thank you.
Yes, breathlessness can be a side effect of immunotherapy treatments used for leukemia. It's a known side effect worth being aware of and discussing with your care team.
Here are some reasons why breathlessness can occur during treatment:
- Low red blood cell counts (anemia): Immunotherapy can reduce healthy blood cells Show Full Answer
Is there side effects with it
Bob, what is your treatment currently for CMML 1? I just started INVOQI, its decitabine in pill form
Hello Rich4. I receive NO treatment for my CMML in the UK. I am diagnosed as: Chronic so it is 8 weekly Wait and See Blood Checks. I am advised that treatment can be troublesome so the suggestion is to wait and see when the Chronic becomes: Acute. Then I have nothing to lose. I accept that and apart from joint pain I am quite well and cheerful. I Refuse any form of counselling, there is absolutely NOTHING I wish I had done that I have never done, and so I plod along in the knowledge my wife will live her life without any money worries, I have two successful children and no one will ever know I existed in 100 years time. Fact. I have made formal arrangements for Newcastle (Medical Teaching Unit) University to accept my body so bits of me may still be around for a few years? Bits of me may amuse the students? they may even learn a bit about this rare CMML?