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that are incredibly itchy to the skin and effects my nervous system. I have ointments and Gabapenten for relief. I would be interested if anyone can share their experiences and how they are treating this condition. Thank you!

September 16
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A MyLeukemiaTeam Member

Thanks Leukemia Team and Robert. I am SO grateful for the last four days, no new skin issues and my entire system feels like the old me. It has been exhausting to feel like my nervous system was constantly being triggered with the heat, itching, etc. I appreciate your experience, Robert and wonder did these skin issues come in cycles or are they constantly popping up ? It's like someone described a 'cytokine storm.'
Thank you!!!

September 22
A MyLeukemiaTeam Member

I had inching in the summer when it is hot and dry. I found a fan provided comfort. Those bad cells do attack our body organs and nervous system. This summer I only had a few days when my body had strange itching or bruising? Our body does indicate strange places where those bad cells concentrate to cause a problem? Take care of yourself and next season be aware of why your problems decrease or increase?

September 23
A MyLeukemiaTeam Member

Yes, I have an upcoming derm appt in a couple of weeks. Thx for your input. I’ve explored your suggested issues in the past. Good ones.

September 17
A MyLeukemiaTeam Member

During the summer I use a fan day & night to keep cool and this solves my problem. Those over active cells collect in the skin and can cause lots of problems including inching, bruising, exploding capillaries, etc. just being normal may cause a strange problem to happen. Last summer I realized that jogging caused bruising which looked greenish then became darker the more stressed I applied at the gym.

September 22
A MyLeukemiaTeam Member

Are you seeing a dermatologist? If not, I definitely would make an appointment to get to the root cause. May or may not be related to CLL. Many things can cause skin issues (allergies, medications, change in detergents, etc). Ointments can often irritate it further if you don’t know the cause of it & are guessing as to what it is.

September 16

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