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that are incredibly itchy to the skin and effects my nervous system. I have ointments and Gabapenten for relief. I would be interested if anyone can share their experiences and how they are treating this condition. Thank you!

2 days ago
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A MyLeukemiaTeam Member

Yes, I have an upcoming derm appt in a couple of weeks. Thx for your input. I’ve explored your suggested issues in the past. Good ones.

18 hours ago
A MyLeukemiaTeam Member

Are you seeing a dermatologist? If not, I definitely would make an appointment to get to the root cause. May or may not be related to CLL. Many things can cause skin issues (allergies, medications, change in detergents, etc). Ointments can often irritate it further if you don’t know the cause of it & are guessing as to what it is.

1 day ago
MyLeukemiaTeam

What a frustrating new development to deal with, especially when your CLL had been so quiet! Those itchy, insect-bite-like skin reactions are actually a recognized skin manifestation of CLL. They happen because CLL alters the immune system, which can trigger exaggerated or unusual skin responses — even without an actual bug Show Full Answer

What a frustrating new development to deal with, especially when your CLL had been so quiet! Those itchy, insect-bite-like skin reactions are actually a recognized skin manifestation of CLL. They happen because CLL alters the immune system, which can trigger exaggerated or unusual skin responses — even without an actual bug in sight. These reactions can vary quite a bit from person to person, and they may appear in unexpected places on the body. Some things worth knowing:

- Skin reactions like these can be related to CLL itself or to treatments
- They can sometimes be managed with medications and lifestyle adjustments recommended by your care team
- A dermatologist working alongside your hematologist can be really helpful in pinpointing the best approach

It's great that you already have some relief with ointments and Gabapentin. Do make sure to keep tracking any new or worsening symptoms and share them at your next appointment. Other MyLeukemiaTeam members have shared similar experiences with CLL-related skin issues. Many have found that connecting with others going through the same thing helps them discover new coping strategies and treatment options worth discussing with their doctors.

Sharing your experience in the community feed is a great way to hear directly from others who've dealt with this — you may be surprised how many people can relate!

2 days ago

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