Deloris, I'm sorry you also have this painful skin sensations but at the same time, I understand how you feel by being able to put a name to it. Makes us feel like we're not crazy! LOL - Apparently this is caused by neuropathy in the extremeties. Do you have that too? My hands and forearms hurt the most, and at night. Which disturbs my sleep and make me even more fatigued during the day. What helps me: warm showers, hot baths with epson salt and bath bombs (baking soda), Microwavable Therapy Mittens, and heated red-light mittens. *** Advocate for yourself and make sure to let your doctor know of this side effects before it gets too serious (nerve damage). They can prescribe medication (Gabatentin takes my spasms away and help me sleep) and they also sometimes reduce your TKI dose for a temporary period or even make you take a break from it completely. - The 100mg dose of Dasatinib is kicking my butt with much stronger side effects than when I was on 50mg and I have lost a lot of quality of life. I am hoping to be able to get a short break soon as I finally reached the MMR or MR3 goal after almost 2 years in my journey. - Stay strong!!

Good for you to find better medical help.

Its my feet and ankles. They hurt so bad. I do heating pads . My doctor ignores my side effects . I am currently looking for a new insurance and doctor..

Oh my gosh that's what Im feeling. I've never had crazy pain like this . And I didn't know it had a name. Thank you for sharing🧡