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I waited 2 months before telling anyone.
Only my husband knew. I am not telling anyone else because I feel like the relationships are now different.

October 15
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Answer Summary

Members connected over the deeply personal question of whether to tell friends and family about a leukemia diagnosis, with many sharing that... Read more

Members connected over the deeply personal question of whether to tell friends and family about a leukemia diagnosis, with many sharing that relationships did shift after revealing their illness. Several members described friends pulling away or acting awkward, while others found their diagnosis revealed who their true supporters really were. A recurring theme was that disclosure is a personal choice, journaling and leaning on those who show up can help, and this community is always a safe place to share the emotional ups and downs of the journey.

A MyLeukemiaTeam Member

This is such a good question. I’m about a year a a half into this thing, and I’ve told nobody except my siblings, who are cool. But anybody else, it hasn’t happened. And frankly - I’m not sure it ever will. I brought this up months ago - and one member here had a brilliant comment - it suggested language that doesn’t include the “L word”. But - it’s a deeply personal thing; for me, I’m not ready to bring this elephant into the room. That said, I have total respect for those who see this issue differently.

October 16
A MyLeukemiaTeam Member

Hi Jill,
I didn’t hide anything from anyone. However everyone is different and they have their reasons. I just felt if it was one of my family and they had luekemia or similar and they didn’t tell me I would be devastated. If peoples relationships change for the worse because you have leukemia, then they aren’t the people you really knew.
Friends and family should support you in sickness and health

October 15
A MyLeukemiaTeam Member

Too exhausted to really answer, but i tell anyone because its possible I'll collapse in a supermarket. I just don't care who knows. In my building, a few act a bit "look at me as though afraid, watch me closely". My dear close friends are kind and caring. I have few friends, no family. Just very picky about close friends, good boundaries where im truly safe and they are too with me.

October 25
A MyLeukemiaTeam Member

generally ppl. are afraid of what they don't understand so they stay distant. They act like it's something they can get if they get too close. give them som etime to adjust and hopefully they will be part of youir support group.

October 20
A MyLeukemiaTeam Member

Exactly! Im trying to learn how to keep some of my anxiety and frustration from being so verbal. Lol. Thats why Im trying to journal as I think it is wearing and causing anxiety for my husband when Im overthinking out loud. This is hard and Cancer Sucks!

October 19

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San Francisco, CA