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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question šŸ’­
San Diego, CA

I ask because I had an MRI recently for my shoulder. I've got some tears in my rotator cuff muscles which was the basic reason for the MRI but they noted some lesions in the humerus. Given my history they said it was possibly leukemic infiltration or bone infarction. Not sure if that is a serious problem or not. I gather it could be part of degenerative bone disease and age related. Just curious as to whether anyone else has had this.

August 25, 2019
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Answer Summary

Members with various forms of leukemia shared widespread experiences of bone and joint pain, shoulder issues (especially rotator cuff tears),... Read more

Members with various forms of leukemia shared widespread experiences of bone and joint pain, shoulder issues (especially rotator cuff tears), and fractures, with many connecting these problems directly to their disease and treatments rather than simply aging. Several members offered practical strategies including taking Claritin for inflammation, using cannabis edibles for pain management, requesting bone density scans to catch osteoporosis early, drinking 8-10 glasses of water daily to flush out toxins that cause joint pain, and advocating persistently with doctors who may dismiss bone pain as unrelated to leukemia. A recurring theme was frustration with medical providers who refuse pain management or additional testing, alongside determination to stay vigilant about symptoms, push through difficult physical therapy, and refuse to accept no for an answer when seeking proper care and diagnosis.

A MyLeukemiaTeam Member

See another doctor if you think it is important to have it checked. Many of our oncologists/hematology are are overloaded. They care but are just way to busy.šŸ˜

May 5, 2023
A MyLeukemiaTeam Member

Hi all, I had previously posted on this pre-transplant for AMML; however, I am 10 months post transplant now and found out yesterday that I have severe osteoporosis at 44 y/o caused by the chemotherapy, radiation, and SCT. If you continue to have bone pain, especially post remission bone pain, ask your doctors for a bone density scan. I will be starting the same treatment next week that my 89 y/o grandmother takes for osteoporosis. Be vigilant about your health and do not accept ā€œNOā€ for answer. Thank the Lord above for me having a vigilant PCP, an adoring oncology group, and the most amazing SCT team a woman could ask for.

February 17, 2024
A MyLeukemiaTeam Member

Most days I do. Are you taking Claritin?
My oncology team uses that to help with inflammation and bone

September 16, 2023
A MyLeukemiaTeam Member

I do joint pain but I am not sure if it is from CLL or what. I do have osteoarthritis and calcific bursitis. Recently had a TKR total knee replacement on the right knee and need the left knee done too! My understanding is it is the osteoarthritis. All I know is I have lots of joint pain but I have been able to manage it. Since I am in stage 0 with CLL, it might be a combination of both issues. I honestly try not to think about it, I just deal with it as it happens and exercise even in pain, it helps to limber up the joints! I hope šŸ™ you are also able to manage to bone pain too!

June 25, 2023
A MyLeukemiaTeam Member

Unfortunately, treatment can also cause devastating side affects & other issues… The Doctors must know everything u experience during treatment & after… Unfortunately, u need to keep on top of everything as well… Really, tough when we are spacey, foggy… The bone pain you are explaining is definitely located in Info on Leukemia!!! Both, bone & joint pain are part of this deal… Please don’t delay in getting any lumps checked… Stay vigilant & Speak up…
PS Completely agree w/Michael D… If u can take a loved one or friend w/a list of question or taking notes… Excellent advice! Unfortunately, I also understand those of us that don’t have the extra support… My best wishes to youšŸ’œ

February 15, 2023

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