Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question 💭
Ocala, FL
December 24, 2022
 · 
Reactions
A MyLeukemiaTeam Member

I think both.

May 10, 2023
A MyLeukemiaTeam Member

Almost twelve year battle so far. I will be starting a study treatment anytime now. Hopefully the treatments will put me in remission once again. God has got this for me.

February 9, 2023
A MyLeukemiaTeam Member

yes it feel's like you just can't stay awake. I feel better with a little nap. Before C.L.L. I never could take a nap during the day. a year in W. & W. at 69 years old. wishing you blessings.

February 7, 2023
A MyLeukemiaTeam Member

Based on my limited experience, I think fatigue is normal with CLL.

August 13, 2023
A MyLeukemiaTeam Member

I was diagnosed in 2015 and did wait and watch for 6 months but counts kept going up. So I started immunotherapy with Rituxan. Every week for 8 weeks. I was tired but ran my own small business, thankfully with some help. After 4 months I did another Roy d of Rituxan for 6 weeks. That gave me 6 months of relief and remission. It was short lived and then I started 6 months of Rituxan/ Bendamustine and Neulasta once a month for 6 months. Got 2.5 years of remission!
Based on my B cell testing I started Imbruvica once a day. Am thankful it’s covered by insurance and I’ve felt so good while taking it. Got most of my energy back too and I’m 74 almost 75

April 30, 2023

Related Questions

View All
A MyLeukemiaTeam Member asked a question 💭
Decatur, GA

A MyLeukemiaTeam Member asked a question 💭
New Jersey, NJ

A MyLeukemiaTeam Member asked a question 💭
Manchester, UK