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Latest statistics are about 30% of CLL diagnosed patients never need treatment other than periodic monitoring . Check out CLLSOCIETY.ORG for lots of useful information.
Hi Jeff:) I don't think there's really a concrete answer. Our bodies/systems are going to do what its going to do. That, of which, we have no control over, but also we truly don't know when and if we get to another stage of our disease. I've seen on this forum so many people that have been in watch and wait for heck 18 yrs and they are still in watch and wait. Other factors come in to play as well...enlarged spleen, enlarged lymph nodes, one's mutation and pq deletion, and so on. Hope you are doing well and that you have a super duper weekend!
Yes, that's true. Chronic lymphocytic leukemia (CLL) is a slow-growing leukemia, and some people do not need to start treatment right away. This approach is known as "watch and wait." People using this approach have regular follow-up visits with their doctor to monitor their leukemia. If symptoms develop or tests show that Show Full Answer
I've been told the same Ken. Sometimes the treatment is worse than the disease. My Dr said many with CLL will die from something unrelated to CLL. I sure hope I fall into this category.
Yeah, they told me that to but my armpit lymph nodes were the size of a golf ball and painful to move my arms. They said they would treat based on symptoms after the golf ball size lymph node was removed in 2021
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