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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question 💭
New York Mills, MN
May 18, 2025
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A MyLeukemiaTeam Member

I think you should learn how medication works and affects the body. I take medication and there was a long list of possible ill affects. I had no ill affect and my bad cell count has been reduced to 6900. I read in CURE magazine 9/24 that a new possible ill affect is high blood pressure and "brain fog?" I hope you can as your medical people questions so you can have enough information to guide you with making an educated requested? I am amazed that there are so many medications for the different leukemias. I have learned that eating healthy and exercising does benefit a person's physical and mental health. This illness can last for many years and there are many members who have done amazing things without treatments? Celebrating Long Life (CLL)

May 19, 2025
MyLeukemiaTeam

When you have CLL and are on watch and wait, treatment typically begins when certain changes occur. Key signs that treatment may be needed include:

- Your lymphocyte count doubles within six months
- You develop anemia (low red blood cell count)
- Your platelet count becomes low
- Your spleen becomes enlarged
- You Show Full Answer

When you have CLL and are on watch and wait, treatment typically begins when certain changes occur. Key signs that treatment may be needed include:

- Your lymphocyte count doubles within six months
- You develop anemia (low red blood cell count)
- Your platelet count becomes low
- Your spleen becomes enlarged
- You experience frequent infections The timeline for starting treatment varies greatly between individuals. Some people may need treatment within months of diagnosis, while others might not need treatment for many years. For example, one person was on watch and wait for nine years before needing treatment.

Your doctor will monitor you through regular blood tests and check-ups. They'll recommend starting treatment when your symptoms become bothersome or when your CLL shows signs of progression. This decision will be made together with your healthcare team based on your specific situation.

May 18, 2025

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