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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question 💭
New York Mills, MN
May 18, 2025
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A MyLeukemiaTeam Member

I think there is a big difference between treatment and medication. After 1 year of W & W I demanded medication. I did not want to have damaged organs or other problems from CLL. I think doctors hold back with medication is the expense but my medical people applied for a grant which paid the insurance co-pay. There is no cure today but the medication can control the bad cells. I was at 75,000 and today 6,800. The control will last until the bad cells mutate and control is lost. Then it is time for a new medication. New medications are being tested or approved every year. Each medication uses a different or new method to control the bad cells and inactivate the cells. I think we should get answers to our questions so we can make the right choice for our health and happiness.

May 19, 2025
A MyLeukemiaTeam Member

In my case it took a combination of factors for me to push for treatment: 1) daily periods of low grade fever 2) internal swollen lymph nodes 3) swollen spleen 4) WBC over 200 and increasing.

May 19, 2025
A MyLeukemiaTeam Member

Thank you🥰

May 19, 2025
MyLeukemiaTeam

Swollen lymph nodes can be a sign that CLL is progressing and may indicate it's time to discuss treatment options with your doctor. When evaluating CLL staging, doctors look at whether your condition has low, intermediate, or high risk. The presence of swollen lymph nodes may put you in the intermediate or high-risk group Show Full Answer

Swollen lymph nodes can be a sign that CLL is progressing and may indicate it's time to discuss treatment options with your doctor. When evaluating CLL staging, doctors look at whether your condition has low, intermediate, or high risk. The presence of swollen lymph nodes may put you in the intermediate or high-risk group. However, not everyone with CLL requires immediate treatment. The decision to move from watchful waiting to active treatment is made by your doctor based on several factors, including genetic mutations in the cancer cells and your overall prognosis. It's important to maintain regular communication with your healthcare team and report any new or worsening symptoms, including changes in your lymph nodes.

May 18, 2025

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