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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 30, 2025
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A MyLeukemiaTeam Member

Lynda, sorry I didn't address the 'immunotherapy drug' question. I have been fortunate enough that my oncologist hasn't deemed it necessary for me to go on it, as of yet. It seems, even for those of in remission, we still have a precarious path to follow.
It surprises me how many of us still struggle with the fatigue, although mine seems to have lessened over the year I've been in remission, but it does occasionally remind me it hasn't left entirely. And even my German stubbornness and tenacity losses the fight against it.
So I tell myself to relax and rest.
In a way, leukemia saved my life, making me slow down, and let go of my workaholic disposition.
I've wondered about the 'immunotherapy treatment ' and what it all entails. And although I've been lucky, haven't not been sickly, I have just gotten over a small case of 'shingles' which most likely was brought on by my own immune system being nearly non-existent.
I had thought the immunotherapy would have been some kind of intrusive treatment, but you saying 'drugs' makes me think it's just an oral medication?

Keep up the fight Lynda, we are WARRIORS indeed.

July 5, 2025
A MyLeukemiaTeam Member

I understand that the new ill affect is "brain fog?" I also know that those bad white blood cells can attack the nervous system and brain? Those bad WBC are all over the body so we have to be careful with possible ill affects?

July 4, 2025
A MyLeukemiaTeam Member

Been in remission since June 2024. Still struggle with most all the above listed symptoms. The cognitive struggles are
especially frustrating.

June 30, 2025
MyLeukemiaTeam

Chemo brain can persist even after treatment, affecting up to 75% of people who have undergone cancer treatment. The cognitive changes can include:

- Memory problems and forgetfulness
- Difficulty concentrating or completing tasks
- Problems with multitasking
- Slower reaction times
- Communication difficulties like Show Full Answer

Chemo brain can persist even after treatment, affecting up to 75% of people who have undergone cancer treatment. The cognitive changes can include:

- Memory problems and forgetfulness
- Difficulty concentrating or completing tasks
- Problems with multitasking
- Slower reaction times
- Communication difficulties like finding the right words
- General feelings of mental "fogginess" or confusion While there's no FDA-approved medication specifically for chemo brain, there are several ways to manage these symptoms:

- Brain-training exercises like puzzles and Sudoku
- Meditation for stress relief
- Regular physical activity
- Maintaining good sleep habits
- Tracking symptoms to identify triggers
- Working with a neuropsychologist for cognitive rehabilitation
- Using written reminders, phone alerts, and sticky notes

Remember that cancer-related fatigue and cognitive changes can occur even in people who haven't had chemotherapy, as the condition itself can contribute to these symptoms.

June 30, 2025

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