Lynda, sorry I didn't address the 'immunotherapy drug' question. I have been fortunate enough that my oncologist hasn't deemed it necessary for me to go on it, as of yet. It seems, even for those of in remission, we still have a precarious path to follow.
It surprises me how many of us still struggle with the fatigue, although mine seems to have lessened over the year I've been in remission, but it does occasionally remind me it hasn't left entirely. And even my German stubbornness and tenacity losses the fight against it.
So I tell myself to relax and rest.
In a way, leukemia saved my life, making me slow down, and let go of my workaholic disposition.
I've wondered about the 'immunotherapy treatment ' and what it all entails. And although I've been lucky, haven't not been sickly, I have just gotten over a small case of 'shingles' which most likely was brought on by my own immune system being nearly non-existent.
I had thought the immunotherapy would have been some kind of intrusive treatment, but you saying 'drugs' makes me think it's just an oral medication?
Keep up the fight Lynda, we are WARRIORS indeed.
I understand that the new ill affect is "brain fog?" I also know that those bad white blood cells can attack the nervous system and brain? Those bad WBC are all over the body so we have to be careful with possible ill affects?
Been in remission since June 2024. Still struggle with most all the above listed symptoms. The cognitive struggles are
especially frustrating.
Chemo brain can persist even after treatment, affecting up to 75% of people who have undergone cancer treatment. The cognitive changes can include:
- Memory problems and forgetfulness
- Difficulty concentrating or completing tasks
- Problems with multitasking
- Slower reaction times
- Communication difficulties like Show Full Answer