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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 31, 2025
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A MyLeukemiaTeam Member

I was sick for years feeling like I had the flu, my dr said I had fibromyalgia my wbc was high. I kept going back because I wasn’t getting any better. Then he sent me to the cancer doctor and I was diagnosed with cll/sll leukemia

September 8, 2025
A MyLeukemiaTeam Member

I had elevated white cell counts for a very long time but was told it was nothing to worry about. I developed a rare autoimmune disease that involved my eosinophilia cells causing severe inflammation. This led to a referral to a hematologist who ordered additional lab work but he did not expect the results that he got. He believes I have had CLL for some time but I’m not a textbook case so it went undetected. This brought about my autoimmune disease. We are hoping treatment of my CLL will resolve the autoimmune disease otherwise I’d be in the W&W category. Many of my leukemia symptoms are the same as fibromyalgia which I was diagnosed with in 2013. It’s a huge relief to know I’m not crazy for questioning my symptoms and lab results the past few years.

September 1, 2025
A MyLeukemiaTeam Member

How were you diagnosed? Only one of my tests came back positive. I have read however, CLL can cause a false negative.

August 31, 2025
A MyLeukemiaTeam Member

I was not diagnosed before my CLL. I just found out I have rheumatoid arthritis.

August 31, 2025
MyLeukemiaTeam

Based on research, many people with CLL have additional health conditions (comorbidities) at the time of diagnosis. In fact, studies show that about 35% of CLL patients have at least one other health condition, and 12% have multiple conditions.

The presence of other health conditions at the time of CLL diagnosis can impact Show Full Answer

Based on research, many people with CLL have additional health conditions (comorbidities) at the time of diagnosis. In fact, studies show that about 35% of CLL patients have at least one other health condition, and 12% have multiple conditions.

The presence of other health conditions at the time of CLL diagnosis can impact survival rates, which is why it's important to work closely with your healthcare team to manage all conditions effectively. CLL affects your immune system by producing abnormal white blood cells that don't function properly. This compromised immune system can make you more susceptible to various infections. If you're experiencing any unusual symptoms or concerns about autoimmune conditions, it's important to discuss these with your healthcare provider, as they can help determine the best approach for managing multiple conditions.

August 31, 2025

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