I was sick for years feeling like I had the flu, my dr said I had fibromyalgia my wbc was high. I kept going back because I wasn’t getting any better. Then he sent me to the cancer doctor and I was diagnosed with cll/sll leukemia
I had elevated white cell counts for a very long time but was told it was nothing to worry about. I developed a rare autoimmune disease that involved my eosinophilia cells causing severe inflammation. This led to a referral to a hematologist who ordered additional lab work but he did not expect the results that he got. He believes I have had CLL for some time but I’m not a textbook case so it went undetected. This brought about my autoimmune disease. We are hoping treatment of my CLL will resolve the autoimmune disease otherwise I’d be in the W&W category. Many of my leukemia symptoms are the same as fibromyalgia which I was diagnosed with in 2013. It’s a huge relief to know I’m not crazy for questioning my symptoms and lab results the past few years.
How were you diagnosed? Only one of my tests came back positive. I have read however, CLL can cause a false negative.
I was not diagnosed before my CLL. I just found out I have rheumatoid arthritis.
Based on research, many people with CLL have additional health conditions (comorbidities) at the time of diagnosis. In fact, studies show that about 35% of CLL patients have at least one other health condition, and 12% have multiple conditions.
The presence of other health conditions at the time of CLL diagnosis can impact Show Full Answer