What a journey you've been on — surviving ALL since 1973 is truly remarkable, and it's clear you've shown incredible resilience over the decades. Sending so much strength your way ahead of next week's surgery.
It's unfortunately not uncommon for long-term survivors of ALL to experience late effects, particularly those Show Full Answer
What a journey you've been on — surviving ALL since 1973 is truly remarkable, and it's clear you've shown incredible resilience over the decades. Sending so much strength your way ahead of next week's surgery.
It's unfortunately not uncommon for long-term survivors of ALL to experience late effects, particularly those treated in earlier decades when treatment protocols were less refined. The treatments that saved lives — like chemotherapy and radiation — can leave lasting impacts on the body that show up years or even decades later. Some known long-term late effects from ALL treatment can include:
- Ongoing fatigue
- Eye problems such as cataracts
- Lung damage
- Heart problems
- Brain fog
- An increased risk of secondary tumors or growths
- Bone and tissue complications
These effects can emerge many years after treatment ends, which aligns with what a MyLeukemiaTeam member like yourself is experiencing.
The most important thing right now is staying closely connected with your medical team, ensuring all your specialists are communicating with each other about your full picture. You deserve coordinated, thorough care. Wishing you a smooth surgery and recovery. 💙
May 31
I have let my team know...no response, i cant find any support fo A.L.L. late effects from my era
May 31
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