Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
May 17
 · 
Reactions
A MyLeukemiaTeam Member

During the day when I relax in the afternoon I find myself getting sleepy. I try to stay awake past 8 PM and then sleep all night. I do get up before 6 AM and begin my day. This morning I was outside at 7 AM cutting weeds in an area 100 ft by 300 ft. My wife came outside to tell me it was time to quit because I had been outside for 2 hours. Then around 3 PM I was getting tired but by 4 PM I was ready to go until 9 PM. I had learned years ago if I relaxed during the day I might be up at night because of that little nap during the day. I hope you can push through the day so you can sleep at night.

May 17
A MyLeukemiaTeam Member

TomGorney
Yeah the sleep thing, mine comes from both the leukemia and my liver issues. Just when I think I have it mastered, it starts again. Due to medicine sensitivity, I can't take sleeping meds---hepatologist has me on zyrtec at night ( helps with the prickly itches and kinda sleep--sort of), then I'm on new BP meds, 2 at night supposed to make you sleepy ( two nights at most). Now I'm looking at a vagus nerve thing that's supposed to relax, clear the mind ( if it clears mine, get out of the way there's a myriad of chunk), lessen the fight or flight sub conscious). It's pricey, I'm getting it end of the month, I'll let you know--and of course because its designed to help, its not covered under insurance OTC. I'll let you know and no I can't take naps as they make me serial killer grumpy. I'll let you know.... Michele

May 19
A MyLeukemiaTeam Member

I take two Benadryl a half hour before bedtime. Puts me to sleep. My doctor said it was ok. Take that afternoon nap, I do! You deserve it…. Give it a try.

May 17
A MyLeukemiaTeam Member

Before being diagnosed with leukemia (CLL) I had a sleep issue. I had sleep apnea, used a CPAP machine and had insomnia. If I actually did get sleepy and was at home, I slept. Then I couldn’t sleep at night. I was tired all the time.
I finally went to a sleep doctor. Her first recommendation was to take control of my sleep schedule. She had me decide what times to use to go to bed and to get up. For a couple of weeks I fought to stay awake in the daytime, then lay in bed wide awake. But finally my body surrendered to my control over my sleep schedule and now, several years later, I only have occasional nights of insomnia.

If there is a sleep doctor in your area, make an appointment and get started working on solving your sleep problems. I hope you are able to solve your sleep problems.

May 17
A MyLeukemiaTeam Member

I use lavender essential oil at night to sleep it really helps me sleep

May 17

Related Questions

View All
A MyLeukemiaTeam Member asked a question 💭
Allentown, PA

A MyLeukemiaTeam Member asked a question 💭
Ocala, FL