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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question 💭
Augusta, WV
July 7
 · 
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A MyLeukemiaTeam Member

So sorry to hear you have it. 😗 I have not had autoimmune Rheumatoid Arthritis, but I do have osteoarthritis and that is painful enough. I hope you find some relief for your symptoms and pain. Good Luck!!! Sending you a big hug and prayers!!!

July 9
A MyLeukemiaTeam Member

I was dx'd with RA about 15 years ago. Also dx'd with a rare autosomal recessive kidney disorder (Cystinuria) 50 years ago at age 17, and Autoimmune Thyroiditis about 30 years ago. It seems I am a genetic mess, LOL. I have had elevated WBC count for the last 11 years. I kept asking my doctors why the high WBC's. They would always say: it's "probably... the meds you are on or the RA or Fibromyalgia or it's a leap year"....etc. I finally pressed for a definitive answer. My labs confirmed CLL. I have now probably had CLL for at least 10 years. I don't know where that puts me as far as prognosis/time. I do have some B-symptoms that the doctor has brushed off so she still has me in the "watch and wait" category. I have good days and bad days. Today is a good day and I'll take it.

July 8
A MyLeukemiaTeam Member

My family did not have the arthritis gene so this never occurred?

July 10
A MyLeukemiaTeam Member

I had RA years ago. I still do. However, I also have scleroderma, another rare autoimmune disease with no cure and little treatment. I don’t know if one led to the other or what. I have CMML2.

July 7
A MyLeukemiaTeam Member

I developed Giant Cell Arteritis (GCA) which is blood clots in my temporal vein. Among I the things it can cause is instantaneous permanent blindness? How many others with CLL developed this condition?

July 7

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