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He is in the palliative stages of both diseases so no active treatment is being given to him.
What’s best to keep him free from pain and comfortable? It’s a hard watch 😔

August 9
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A MyLeukemiaTeam Member

Hi Julie. So sorry you’re having to go through what you’re going through with your dad. Here in the states, they have hospice which will use meds to keep the patient comfortable & pain free. Do they have that there? If no, ask his doctor to please prescribe something for him. Sending you inner strength…

August 9
MyLeukemiaTeam

First, vomiting blood is a serious symptom that needs immediate medical attention — please contact his care team or seek emergency help right away if it happens again. This could be related to his CLL affecting his blood counts or other complications, and his palliative team needs to know about it urgently. For keeping him Show Full Answer

First, vomiting blood is a serious symptom that needs immediate medical attention — please contact his care team or seek emergency help right away if it happens again. This could be related to his CLL affecting his blood counts or other complications, and his palliative team needs to know about it urgently. For keeping him comfortable in palliative care, his medical team is the best guide, but here are some general comfort-focused approaches that are commonly part of palliative support for CLL:

- Pain management — his palliative team can prescribe medications to keep him as pain-free as possible
- Rest and sleep — keeping his environment cool and calm can help with night sweats and restlessness
- Gentle nutrition — small, easy-to-manage foods if he's able to eat
- Emotional and spiritual support — palliative care teams often include counselors and chaplains for both patients and families

Palliative care is designed to focus entirely on comfort and dignity at any stage, and his team should be coordinating all of this for him. This is an incredibly hard journey to walk alongside someone you love. Please make sure you're also leaning on support for yourself — caregivers need care too. 💙

August 9

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