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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 23
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A MyLeukemiaTeam Member

Make sure you know about CML and the different medications. I have CLL but I do know about CLL and the different medication (I take Brukinsa.) I realize that my illness is a long term issue which is being controlled by medication and all my blood tests are 100% normal. Only my wife knows I have CLL. My life and my blood tests are 100% normal. I am happy and healthy because I eat healthy and exercise. I hope you will be able to explain your illness, what you are doing to improve your health, what changes you are doing or plan to do? Personally I do not want to burden others with knowing my illness when they can use their emotional energy to take care of themselves or help others? If you are in wait and watch you have to learn about your illness, treatments, medications and activities to improve your future. Celebrating Long Life (CLL)

August 24
MyLeukemiaTeam

First, take a breath β€” the fact that you're thinking so carefully about how to tell her shows how much you love her. There's no perfect script, but honesty, delivered with warmth, goes a long way.

A MyLeukemiaTeam member shared this: "It makes a big difference when you have support and compassion on this journey. It really Show Full Answer

First, take a breath β€” the fact that you're thinking so carefully about how to tell her shows how much you love her. There's no perfect script, but honesty, delivered with warmth, goes a long way.

A MyLeukemiaTeam member shared this: "It makes a big difference when you have support and compassion on this journey. It really is one day at a time." Here are some gentle tips that may help when talking to your daughter:

- Choose a calm, private moment where she feels safe and comfortable
- Use simple, clear language β€” avoid overly medical terms at first
- Let her questions guide the conversation rather than overwhelming her with information all at once
- Reassure her this is not her fault β€” children and young people can sometimes internalize a parent's illness
- Share your feelings too β€” it's okay to say "this is hard for me to talk about, but I love you and want you to know"
- Remind her how loved she is, no matter what

The age of your daughter may shape how much detail you share, so follow her lead on how deep the conversation goes. It's also worth knowing that the Leukemia & Lymphoma Society has resources specifically designed to help with these conversations. Your care team may also be able to connect you with a counselor who can help you prepare.

You've already shown so much courage telling your parents and partner. This next step, as hard as it feels, will likely bring you even closer to your daughter. πŸ’›

August 23

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