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Today I went into hospital to do my IVG treatment , this was a training exercise in preparation for me doing treatment at home. Normally at hospital my appointment is an entire day wasted with the consultant and then onto treatment. I have been doing this hospital treatment now for over three years, this was done every month making it a complete day wasted
Today I managed to do the infusion myself at hospital with a nurse training me, it took 15 minutes of infusion. It took longer to setup and… read more
That's really great that you're able to do your treatment at home, I've never heard of such a thing 😀
I did that for 6-7 years until my hematologist sadly took it from me in the middle of CLL18 MOIRAI TRIAL treatment with Obinutuzumab and Venclyxto. It went smoothly. Now I have to take penicillin 3 days weekly to try and avoid infection
Wonder if it’s only done in Australia ?
What a fantastic experience to share! A MyLeukemiaTeam member has described transitioning from monthly full-day hospital visits for IVIG treatment to a home-based weekly subcutaneous (under the skin) infusion routine — and found it surprisingly straightforward after training.
For others considering this, here's what the home Show Full Answer
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