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A MyLeukemiaTeam Member asked a question 💭
East, TN
June 18
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A MyLeukemiaTeam Member

It took me ten months to learn about the different medications and what CLL was since my doctor told me nothing. I requested medication after the doctor raised the limit of when I had to worry? I just discovered from a new doctor my spleen was enlarged which is STAGE # 3 CLL. My choice to demand medication was over due. Personally I think doctors refrain from proscribing medication because of the cost ($15500 per month with a co-payment of $3400.) My medical people applied for a money grant of $4000 to pay 100% of the copay. My insurance paid the biggest part of the expense. I had $0 for my prescription. After two years I take my medication at 50% dose with 100% protection or a normal WBC count of 7600. Learn about CLL and medications. My medication may be good for 10 to 20 years. There may be medication to "cure?" CLL in. ten years? Celebrating Long Life (CLL)

June 20
MyLeukemiaTeam

When should the decision for leukemia treatment be made?

The timing of treatment depends on several personal and medical factors. In some cases, treatment may not be needed right away — a "watch and wait" approach may be recommended if symptoms are mild and the condition isn't advanced. A doctor will typically consider the Show Full Answer

When should the decision for leukemia treatment be made?

The timing of treatment depends on several personal and medical factors. In some cases, treatment may not be needed right away — a "watch and wait" approach may be recommended if symptoms are mild and the condition isn't advanced. A doctor will typically consider the following before recommending when to start treatment:

- Your age and overall health
- The type and stage of leukemia
- Your symptoms
- Results from blood tests and genetic testing
- Whether your leukemia is newly diagnosed, relapsed, or hasn't responded to prior treatment
- Your personal goals and priorities The decision to start treatment is always a collaboration between you and your doctor. Some helpful questions to ask include:

- Should I start treatment now or wait?
- What are the risks and benefits of starting sooner vs. later?
- Are some treatments likely to work better for me than others?

Open communication with your care team is key. If something doesn't feel right, seeking a second opinion is always a valid option.

June 18
A MyLeukemiaTeam Member

Depends on the severity and if it’s acute. Any of these two things, act fast.

July 8

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A MyLeukemiaTeam Member asked a question 💭

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