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A MyLeukemiaTeam Member asked a question 💭
September 4
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A MyLeukemiaTeam Member

I’ve been anemic fir over 2 years. My oncologist ordered 2 IV iron infusions. They barely moved the needle on the blood tests. So I have just stayed anemic, tired and cold. I’m taking a targeted therapy now for my CLL. But the medication can cause low red blood cell counts. So, anemia may always be a part of my life.

I carry a rechargeable hand warmer in my purse going to church or the doctors office or anywhere with temperatures set too low for comfort for me. I also always have a jacket or sweater.

Hope you get answers and have better success, but just beware that leukemia that causes low red blood cell counts and low hemoglobin may make anemia difficult to overcome.

September 4
A MyLeukemiaTeam Member

I am on a new prescription iron supplement of 300mg. I have tried many iron supplements in the past with not much success. I have tried ferratin 150 but it wasnt helping much. If you are going to start an iron supplement watch out because some will cause major constipation and that in itself will make you feel horrible all over. I take mine with fruit and i make sure i eat fruit every day to help make sure i dont get too constipated. I am now taking my supplement every other day to give my system a rest. Best to ask your doctor how much to take according to your blood levels first. I am on a high dose because my ferritin was only 7 and many iron supplements were not working. Some iron supplements will constipate you more than others as well. I have tried fibre supplements too but it doesnt help. Eating more fruit was the key for me.

September 5
A MyLeukemiaTeam Member

Best to consult & ask your Doctor Wendy. They will determine based on all of your lab work, how much iron. Important to not overload ones system so the Doctor has your answer.

September 4
MyLeukemiaTeam

That's a really important question, and the honest answer is: it depends — and only a doctor can determine the right amount for you specifically.

Anemia is common in people with CLL, and iron deficiency can be one contributing factor. However, anemia in CLL can have multiple causes, so it's essential to get iron levels Show Full Answer

That's a really important question, and the honest answer is: it depends — and only a doctor can determine the right amount for you specifically.

Anemia is common in people with CLL, and iron deficiency can be one contributing factor. However, anemia in CLL can have multiple causes, so it's essential to get iron levels checked first before taking any supplements. Here's what is generally known about managing iron and anemia with CLL:

- Get tested first — only take iron supplements if your doctor recommends them based on your blood work
- Oral iron supplements are one option a doctor may suggest
- Intravenous (IV) iron infusions may be recommended in some cases
- Eating iron-rich foods can also help, including:
- Red meats
- Green leafy vegetables
- Beans and lentils
- Enriched bread and cereal
- Pumpkin seeds
- Broccoli

Pairing iron-rich plant foods with vitamin C (like a squeeze of lemon) can help your body absorb iron more effectively.

Always speak with your healthcare team before starting any iron supplement — taking too much iron can actually be harmful. They'll guide you to the right dosage based on your specific situation.

September 4

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